Key Research Initiatives

The National Psoriasis Foundation (NPF) Psoriasis Prevention Initiative will invest an estimated $6.5 M across five years to provide multi-stage funding support to meritorious projects from multi-institutional, multi-disciplinary teams with the goal of identifying an intervention that will prevent the onset of psoriatic disease, disease relapse, or relevant comorbidities.

Early recognition, diagnosis, and treatment of psoriatic arthritis (PsA) are critical to relieving pain and inflammation and helping to prevent joint damage. Research has made great strides in understanding and treating PsA, but the lack of a diagnostic test remains a challenge for medical professionals.

The NPF PsA Diagnostic Test Grant will progress development of the first diagnostic test for PsA, dramatically reducing guesswork and long delays in diagnosis and treatment – delays that can cause years of pain and irreparable joint damage.

Since its inception, patients have been at the center of NPF’s mission. This commitment to patients is displayed in our programs and platforms including:

Citizen Pscientist, a patient-powered research platform that provides real world data about individuals with psoriasis, and the Citizen Pscientist Psoriasis Diagnosis Validation Study, which aims to assess the accuracy of patient-reported, physician-given diagnoses of psoriasis.

NPF’s Annual Survey, which provides valuable insights into the lived experience of individuals with psoriasis, including quality of life and unmet needs.

With funding from the Patient Centered Outcome Research Institute, NPF’s Research Ambassador program sought to train a group of experienced and knowledgeable individuals with psoriatic disease to help them engage researchers about the experience of patients with psoriasis to better align current research with the patient preferences and needs.