Pso what? Living with psoriasis
What is it like to live with psoriasis?
You might feel like you are different from everyone else. You may be scared or even mad about having this be a part of your life. One of the most important things you can do is to learn everything you can about psoriasis. The more you know about it, the more you can help decide how to treat it and how to live with it. This will help you feel more in control of your psoriasis and more in control of your life.
What should I tell people about psoriasis?
Part of being a kid with psoriasis is that you don't always have a parent or other adults around to explain it to everyone. You might be scared to talk about psoriasis with others. The good news is: You get to decide what you say about your psoriasis!
Sometimes you can avoid situations where you have to talk with other people about your psoriasis. Wearing long sleeves, for example, can make it easier on days when you don't feel like having people stare or ask questions. Another way of dealing with other people is to teach them about psoriasis. The more the people around you know about psoriasis, the better and easier it will be for you.
Sit down with your parents and talk about what you want to tell other people about psoriasis. What you say is up to you. There is nothing to be ashamed of or embarrassed about. Most people just want to know what it is, how you got it, and if they can get it. They may want to know what you do about it. You can share as much or as little information as you like. You might be surprised at how caring and helpful people can be once they know about you and how psoriasis affects you.
If you decide to tell a new friend, you don't have to make a big deal out of it. You can mention how you love skateboarding and that doing it out in the sun also helps your psoriasis.
Being healthy with psoriasis
Besides medications and treatments, there are many things you can do to help manage your psoriasis. Eating healthy foods, getting lots of physical exercise and finding ways to deal with stress are all helpful.
It is good to understand your feelings about psoriasis, too. One of the hardest things about living with psoriasis is that you never know when it is going to go away or come back. Many kids feel afraid about psoriasis returning or getting worse. They may feel surprised, scared, sad or angry about what's happening to their skin. It's OK to have these feelings. Read about how other kids stay positive.
Find someone, whether they have psoriasis or not, who is willing to listen to you. It's important to have someone who listens and understands your feelings about psoriasis. Ask your friends and family to listen to you when you need to talk about it. Talking about it can help you feel better.
Find someone to talk to through our Pen Pal page!
Find healthy ways to let emotions such as anger or sadness out. Exercising, doing art and writing about your feelings are just a few ways to express your emotions in a healthy way. Remember that people who have psoriasis can live happy, fun, exciting lives. And you can, too!