Public Policy Priorities
The National Psoriasis Foundation's advocacy priorities are focused on strategies that promote federal research efforts and ensure individuals living with psoriatic disease have fair and affordable access to needed treatments. The 2014 advocacy agenda includes:
- Growing and supporting federal investment in psoriasis and psoriatic disease research,
- Advancing the psoriasis and psoriatic arthritis public health efforts at the CDC,
- Reducing out of pocket expenses for medication and treatments
- Ensuring affordable access to new treatments.
Public Health Agenda for Psoriasis and Psoriatic Arthritis
On Feb. 12, 2013, the Centers for Disease Control and Prevention (CDC) released Developing and Addressing the Public Health Agenda for Psoriasis and Psoriatic Arthritis, the first-ever public health agenda for psoriasis and psoriatic arthritis. The psoriasis and psoriatic arthritis public health agenda lays out a clear roadmap for scientists and researchers, and the CDC will need adequate funding to move forward with this plan. The National Psoriasis Foundation will continue to pursue efforts that support federal investment in psoriasis and psoriatic disease research.
Access to Health Care
High out-of-pocket costs force many patients to stop taking their medications. They simply cannot afford them. Without treatment, many psoriasis and psoriatic arthritis patients risk serious health complications.
The National Psoriasis Foundation is addressing this alarming trend through grassroots advocacy at the state level. Our state advocacy program focuses on changing unfair insurance practices that prevent people with psoriasis and psoriatic arthritis from getting the care they need to best manage their condition. The Foundation is working state-by-state to ensure that the needs of people with psoriatic diseases are considered when implementing health care reform.
Psoriatic Disease on the Global Stage
Thanks to thousands of advocates around the world, in 2013 the World Health Organization (WHO) Executive Board adopted the Psoriasis Resolution to recognize World Psoriasis Day. As part of this resolution, the WHO calls for a report on psoriasis and psoriatic arthritis on its website.
The National Psoriasis Foundaton and the International Federation of Psoriasis Associations (IFPA) continue to build understanding of and support for the resolution. In May 2014, all 194 members of the World Health Organization will consider this resolution at the 67th World Health Assembly, where it requires unanimous support to pass.