Psoriasis legislation
The Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2009 (H.R. 930/S. 571) is the first and only bill specific to psoriasis and psoriatic arthritis in Congress. Once passed, this legislation will increase the amount of psoriasis research conducted, bringing us closer than ever to finding a cure for psoriatic diseases.
Known as PPARCCA, this bipartisan measure calls upon the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to expand their support of research of psoriatic diseases.
Specifically, the bill:
- Expands psoriasis and psoriatic arthritis research conducted by the NIH;
- Strengthens data collection by establishing a national psoriasis and psoriatic arthritis patient registry through the CDC;
- Establishes a federal summit on psoriasis and psoriatic arthritis to discuss current issues and efforts and explore opportunities in psoriasis research and care; and
- Calls for an Institute of Medicine study to evaluate and make recommendations on access to care for people with psoriasis and psoriatic arthritis.
First introduced during the 110th session of Congress in 2007, the bill was reintroduced in the House of Representatives by Rep. David Wu, D-Ore.-1st, with Rep. Jim Gerlach, R-Pa.-6th, and Rep. Debbie Wasserman-Schultz, D-Fla.-20th, and Rep. Todd Platts, R-Pa.-19th. The legislation was reintroduced in the Senate by Sen. Robert Menendez, D-N.J., with Sens. Robert Casey, D-Pa., Christopher Dodd, D-Conn., John Kerry, D-Mass., and Ron Wyden, D-Ore.
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